[GCFL-discuss] hydranenencephaly

[Discussion of the Good, Clean Funnies List]

I will have to read again what Barb wrote -- in general, the brain is almost completely gone and they live with just a brainstem.  When you transilluminate the head of a baby with hydranencephaly, the entire head glows because there is only cerebral spinal fluid (csf) in their little heads.  Some children have patches of brain matter, not connected to anything necessarily.  I'm sure that's what Barb is referring to.  If they have any notable brain matter (other than the brain stem), then their diagnosis is something other than hydranencephaly.
A child who is born anencephalic (no brain) does not have a chance for survival beyond a few hours.  Very sad indeed.  They also are born with deformed heads as there was never a brain to hold the skull out.  In Hydranencephaly, there was a brain at some point and then there was a vascular accident of some sort (stroke) and the brain dissolved into CSF.
I will bring your comments to the attention of our fearless leader -- I did not make up the little slogan, another mom did.  I am just using it because it says there is more to consciousness than a complete brain.
Jeanene
A child born with Hydranencephaly is one of Life's Little Miracles.
They live, laugh, and love -- all without a brain.
www.hydranencephaly.com 
  ----- Original Message ----- 
  From: Discussion of the Good, Clean Funnies List 
  To: Red 
  Sent: Thursday, May 25, 2006 2:28 PM
  Subject: Re: [GCFL-discuss] hydranenencephaly


  Jeanene
  After seeing that comment about hydranenencephaly so many times, I decided to follow your link to the website about it.
  What it says there does not support the comment in your signature -- that they do what they do without a brain.  What it says is that what they are able or unable to do depends on the amount of damage and where in the brain the damage is.  A child with no brain at all is unlikely to survive birth.

  That said, I'm curious to know why you put that comment on your signature.


  greenBubble 




------------------------------------------------------------------------------
  Subject: Re: [GCFL-discuss] You Know You're From or In Pennsylvania If...


  Thank you most kindly, gentle sir.  I know more today than I did yesterday.  It must be a good day.
  And for the record, I WAS asking for your comments.  I read every one you write.  Sometimes I groan and ignore them, sometimes I smile, knowing I agree, but not letting you know it, and sometimes I comment.  So there!
  Jeanene
  A child born with Hydranencephaly is one of Life's Little Miracles.
  They live, laugh, and love -- all without a brain.
  www.hydranencephaly.com 

        -------------------------------------------------------------------------------
        This message and any included attachments are from Siemens Medical Solutions 
        USA, Inc. and are intended only for the addressee(s). 
        The information contained herein may include trade secrets or privileged or 
        otherwise confidential information. Unauthorized review, forwarding, printing, 
        copying, distributing, or using such information is strictly prohibited and may 
        be unlawful. If you received this message in error, or have reason to believe 
        you are not authorized to receive it, please promptly delete this message and 
        notify the sender by e-mail with a copy to Central.SecurityOffice at shs.siemens.com 

        Thank you
       



------------------------------------------------------------------------------


  _______________________________________________
  GCFL-discuss mailing list
  GCFL-discuss at gcfl.net
  http://gcfl.net/mailman/listinfo/gcfl-discuss
-------------- next part --------------
An HTML attachment was scrubbed...
URL: http://gcfl.net/pipermail/gcfl-discuss/attachments/20060525/82acbfb2/attachment.htm